G: Other Organizations

MODULE G: OTHER ORGANIZATIONS THAT SUPPORT SPECIAL NEEDS & DISABILITIES

IN THIS MODULE:

CAUTIONS

As you seek to serve a Scout with a disability or a family member, you may want to look at outside sources beyond the BSA Inclusion Toolbox.  If you reach out to others to discuss a specific situation, do not provide the name of the person you are discussing, or any personally identifiable information.

It is nearly impossible to assemble a list of organizations that is complete for every purpose.  The organizations and websites in this list have a national or international presence.  Many of these organizations also have local or state affiliates or chapters that may be able to provide additional local resources.  There are also countless local organizations that serve people with special needs and disabilities that are not connected to a national organization.  If you are not able to find them on the internet, we suggest you network with the special education department of your local public school system or the local office of the rehabilitative services agency for your state or jurisdiction.

You may feel we made some omissions here. There are many well-known organizations that primarily serve professionals in the medical, therapeutic, or educational communities.  To be included in these lists, the organization’s web presence needed to show that they made a public education effort as well as a professional education effort.

These lists have been sorted (imperfectly) into categories.  When an organization serves needs in more than one category it has been listed in more than one category.

The website addresses were last verified in August 2019.

GENERAL/COMPREHENSIVE

AbleData

Administration for Community Living

103 W. Broad Street, Suite 400

Falls Church, VA 22046

800-227-0216

TTY: 301-608-8912

abledata.com

American Academy of Pediatrics

aap.org

healthychildren.org/english/health-issues/conditions

Center for Parent Information & Resources

c/o SPAN

35 Halsey St., 4th Floor

Newark, NJ 07102

973-642-8100

parentcenterhub.org/resourcelibrary

Centers for Disease Control

National Center on Birth Defects and Developmental Disabilities (NCBDDD)

800-232-4636

cdc.gov/ncbddd/index.html

Disability Is Natural

BraveHeart Press

P.O. Box 39076

San Antonio, TX 78218

210-320-0678

disabilityisnatural.com

Easter Seals

233 S. Wacker Drive, Suite 2400

Chicago, IL 60606

800-221-6827

easterseals.com

Office of Disability Employment Policy

U.S. Department of Labor

200 Constitution Avenue NW

Washington DC 20210

866-487-2365

dol.gov/odep

Office of Special Education Programs

U.S. Department of Education

400 Maryland Avenue, SW

Washington, D.C. 20202

800-872-5327

www2.ed.gov/about/offices/list/osers/osep/index.html

TASH    (Disabilities Advocacy)

2013 H St. NW, Suite 404

Washington, DC 20006

202-540-9020

tash.org

National Center on Health, Physical Activity, and Disability

4000 Ridgeway Drive

Birmingham, AL 35209

800-900-8086

nchpad.org

National Organization on Disability

77 Water St., Suite 204

New York, NY 10005

646-505-1191

nod.org

National Rehabilitation Information Center

National Institute on Disability, Independent Living, and Rehabilitation Research (NIDILRR)

800-346-2742

TTY: 301-459-5984

naric.com

World Institute on Disability

3075 Adeline Street, Suite 155

Berkeley, CA 94703

510-225-6400

wid.org

ADAPTED SPORTS

BlazeSports America

1670 Oakbrook Dr., Suite 331

Norcross, GA 30093

404-270-2000

blazesports.org

Disabled Sports USA

451 Hungerford Drive, Suite 100

Rockville, MD 20850

301-217-0960

disabledsportsusa.org

International Blind Sports Federation

Nijenheim 2419

3704 VJ Zeist

The Netherlands

ibsasport.org

Special Olympics International

133 19th St. NW

Washington, DC 20036-3604

202-628-3604

800-700-8585

specialolympics.org

United States Association of Blind Athletes

1 Olympic Plaza

Colorado Springs, CO 80909

719-866-3224

usaba.org

USA Deaf Sports Federation

P.O. Box 2011

Santa Fe, NM 87502

usadeafsports.org

U.S. Paralympics Team

United States Olympic Committee

One Olympic Plaza

Colorado Springs, CO 80909

888-222-2313

teamusa.org

Wheelchair and Ambulatory Sports USA

P.O. Box 621023

Littleton, CO 80162

720-412-7979

adaptivesportsusa.org

ATTENTION DEFICIT HYPERACTIVITY

Children and Adults with Attention-Deficit/Hyperactivity Disorder

National Resource Center on ADHD

4601 President Dr., Suite 300

Lanham, MD 20706

800-233-4050

chadd.org

Attention Deficit Disorder Association

P.O. Box 7557

Wilmington, DE 19803-9997

800-939-1019

add.org

AUTISM

The Autism Society

4340 East-West Highway, Suite 350

Bethesda, MD 20814

800-328-8476

autism-society.org

Autism Speaks

1 E. 33rd S., Fourth Floor

New York, NY 10016

888-288-4762

autismspeaks.org

Autism Empowerment

P.O. Box 67167

Vancouver, WA 98681

360-852-8369

AutismAndScouting.org

BLIND/LOW VISION

American Printing House for the Blind Inc.

P.O. Box 6085

1839 Frankfort Ave.

Louisville, KY 40206-0085

502-895-2405

aph.org

Bookshare

480 S. California Avenue

Palo Alto, CA 94306

650-352-0198

bookshare.org

Guide Dogs for the Blind

P.O. Box 151200

San Rafael, CA 94915-1200

800-295-4050

guidedogs.com

International Blind Sports Federation

Nijenheim 2419

3704 VJ Zeist

The Netherlands

ibsasport.org

National Federation of the Blind

200 E. Wells Street at Jernigan’s Place

Baltimore, MD 21230

410-659-9314

nfb.org

National Library Service for the Blind and Physically Handicapped

1291 Taylor St. NW

Washington, DC 20542

800-424-8567

TDD: 202-707-0744

http://www.loc.gov/nls

United States Association of Blind Athletes

1 Olympic Plaza

Colorado Springs, CO 80909

719-866-3224

usaba.org

American Foundation for the Blind

2 Penn Plaza, Suite 1102

New York, NY 10121

212-502-7600

afb.org

American Council of the Blind

1703 N. Beauregard St., Suite 420

Arlington, VA 22201

800-424-8666

acb.org/blind-low-vision-resources

DEAF/HARD OF HEARING

Alexander Graham Bell Association for the Deaf and Hard of Hearing

3417 Volta Place, WW

Washington, D.C. 20007

202-337-5220

agbell.org

American Society for Deaf Children

PO Box 23

Woodbine, MD 21797

800-942-2732

deafchildren.org

American Speech-Language-Hearing Association

2200 Research Blvd

Rockville, MD 20850-3289

800-638-8255

ASHA.org

Described and Captioned Media Program

National Association of the Deaf

1447 E. Main Street

Spartanburg SC 29307

800-237-6213

DCMP.org

Hearing Loss Association of America

7910 Woodmont Avenue, Suite 1200

Bethesda, MD 20814

301-657-2248

hearingloss.org

Laurent Clerc National Deaf Education Center

Gallaudet University

800 Florida Ave NE

Washington, DC 20002

202-651-5855

www3.gallaudet.edu/clerc-center.html

National Association of the Deaf

8630 Fenton St., Suite 820

Silver Spring, MD 20910-3819

301-587-1788

TTY: 301-587-1789

nad.org

National Deaf Center on Postsecondary Outcomes

The University of Texas at Austin
College of Education SZB 228
1912 Speedway D4900
Austin TX 78712-1284
512- 471-8283

nationaldeafcenter.org

National Institute on Deafness and other Communication Disorders

31 Center Drive, MSC 2320

Bethesda, MD USA 20892-2320

800-241-1044

http://www.nidcd.nih.gov

USA Deaf Sports Federation

P.O. Box 2011

Santa Fe, NM 87502

usadeafsports.org

FOOD ALLERGIES

Food Allergy Research & Education

7901 Jones Branch Drive, Suite 240

McLean, VA 22102

800-929-4040

Foodallergy.org

INTELLECTUAL

American Stroke Association

(div. of American Heart Association)

7272 Greenville Avenue

Dallas, TX 75231

800-242-8721

stroke.org

The ARC

1825 K Street NW, Suite 1200

Washington, DC 20006

202-534-3700

800-433-5255

thearc.org

Brain Injury Association of America

1608 Spring Hill Road, Suite 110

Vienna, VA 22182

703-761-0750

biausa.org

United Cerebral Palsy

1825 K Street NW, Suite 600

Washington, DC 20006

800-872-5827

ucp.org

National Multiple Sclerosis Society

P.O. Box 4527

New York, NY 10163

800-344-4867

nationalmssociety.org

National Down Syndrome Society

8 E. 41st Street, 8th Floor

New York, NY 10017

800-221-4602

ndss.org

National Down Syndrome Congress

30 Mansell Court, Suite 108

Roswell, GA 30076

800-232-6372

ndsccenter.org

LEARNING DISORDERS

Bookshare

480 S. California Avenue

Palo Alto, CA 94306

650-352-0198

bookshare.org

International Dyslexia Association

40 York Road, Fourth Floor

Baltimore, MD 21204

410-296-0232

dyslexiaida.org

Learning Disabilities Association of America

4156 Library Road

Pittsburg, PA 15234-1349

412-341-1515

ldaamerica.org

National Center for Learning Disabilities

32 Laight St., 2nd Floor

New York, NY 10013

888-575-7373

ncld.org

understood.org

MENTAL HEALTH/BEHAVIORAL

Child Mind Institute

101 E. 56th Street

New York, NY 10022

212-308-3118

childmind.org

National Alliance on Mental Illness

3803 N. Fairfax Drive, Suite 100

Arlington, VA 22203

703-524-7600

nami.org

Mental Health America

2000 N. Beauregard St., Sixth Floor

Alexandria, VA 22311

800-969-6642

TTY: 800-433-5959

mentalhealthamerica.net

Mental Health First Aid

National Council for Behavioral Health

888-244-8980, ext. 5

nationalcouncil.org

mentalhealthfirstaid.org

Therapy Dogs International

88 Bartley Road

Flanders, NJ 07836

973-252-9800

tdi-dog.org

PHYSICAL/MOBILITY

American Stroke Association

(div. of American Heart Association)

7272 Greenville Avenue

Dallas, TX 75231

800-242-8721

stroke.org

BlazeSports America

1670 Oakbrook Dr., Suite 331

Norcross, GA 30093

404-270-2000

blazesports.org

Brain Injury Association of America

1608 Spring Hill Road, Suite 110

Vienna, VA 22182

703-761-0750

biausa.org

Helping Hands

541 Cambridge St.

Boston, MA 02134

617-787-4419

monkeyhelpers.org

International Ventilator Users Network

4207 Lindell Blvd. #110

Saint Louis, MO 63108

314-534-6475

ventusers.org

Spina Bifida Association

1600 Wilson Blvd., Suite 800

Arlington, Virginia 22209

800-621-3141

spinabifidaassociation.org

United Spinal Association

120-34 Queens Blvd. #320

Kew Gardens, NY 11415

718-803-3782

unitedspinal.org

United Cerebral Palsy

1825 K Street NW, Suite 600

Washington, DC 20006

800-872-5827

ucp.org

National Multiple Sclerosis Society

P.O. Box 4527

New York, NY 10163

800-344-4867

nationalmssociety.org

Muscular Dystrophy Association-USA

National Headquarters

222 S. Riverside Plaza, Suite 1500

Chicago, IL 60606

800-572-1717

mdausa.org

National Library Service for the Blind and Physically Handicapped

1291 Taylor St. NW

Washington, DC 20542

800-424-8567

TDD: 202-707-0744

loc.gov/nls

SPEECH/LANGUAGE

American Speech-Language-Hearing Association

2200 Research Blvd

Rockville, MD 20850-3289

800-638-8255

ASHA.org

American Stroke Association

(div. of American Heart Association)

7272 Greenville Avenue

Dallas, TX 75231

800-242-8721

stroke.org

Brain Injury Association of America

1608 Spring Hill Road, Suite 110

Vienna, VA 22182

703-761-0750

biausa.org

National Down Syndrome Congress

30 Mansell Court, Suite108

Roswell, GA 30076

800-232-6372

ndsccenter.org